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The following resources are provided to you by physicians and staff of the Children's Neurology Center.
Arnold Chiari Malformation
Arnold Chiari Family Network
c/o Maureen and Kevin Walsh
67 Spring Street
Weymouth, MA 02188
617-337-2368
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Attention Deficit Disorder
The ADHD Challenge
P.O. Box 2277
West Peabody, MA 01960-7277
800-233-2322
978-535-3366
Email: koplow@grs.net
AD-IN: Attention Deficit Information Network
475 Hillside Avenue
Needham, MA 02194
781-455-9895
781-444-5466 (fax)
www.addinfonetwork.com
CHADD: Children and Adults with Attention Deficit Disorder
8181 Professional Place, Suite 201
Landover, MD 20785
800-233-4050
301-306-7070
301-306-7090 (fax)
www.chadd.org
Email: national@chadd.org
National ADD Association
1788 Secont Street, Suite 200
Highland Park, IL 60035
847-432-2332
847-432-5874 (fax)
www.add.org
Email: mail@add.org
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Autism
Autism Society of America
7910 Woodmont Avenue, Suite 300
Bethesda, MD 20814-3015
800-328-8476
301-657-0881
301-657-0869 (fax)
www.autism-society.org
COSAC: NJ Center for Outreach and Services for the Autism Community, Inc.
1450 Parkside Avenue, Suite 22
Ewing, NJ 08638
800-428-8476
609-883-8100
www.njautism.org
Email: information@njcosac.org
Brain Tumors
Brain Tumor Foundation for Children
2231 Perimeter Park Drive, Suite 9
Atlanta, GA 30341
770-458-5554
770-458-5467 (fax)
Email: eallman1@juno.com
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Dyslexia and Learning Disabilities
The International Dyslexia Association
(formerly The Orton Dyslexia Society)
Chester Building, Suite 382
8600 La Salle Road
Baltimore, MD 21286-2044
800-222-3123
410-296-0232
410-321-5069 (fax)
www.interdys.org
Email: info@interdys.org
Learning Disabilities Association of America
4156 Library Road
Pittsburgh, PA 15234-1349
412-341-8077
412-341-1515
412-344-0244 (fax)
www.ldanatl.org
Email: ldanatl@usaor.net
National Center for Learning Disabilities
381 Park Avenue South, Suite 1401
New York, NY 10016
888-575-7373
212-545-7510
212-545-9665 (fax)
www.ncld.org
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Early Intervention
Southern Regional Early Intervention Collaborative
Winslow Professional Building
339 South Route 73, Suite 6
Berlin, NJ 08028
Telephone: (609) 768-6747
FAX: (609) 768-7608
Executive Director Janet Cornwell
(Atlantic, Burlington, Camden, Cape May, Cumberland, Gloucester, and Salem Counties)
Central Regional Early Intervention Collaborative
9 Deerpark Drive, Suite 103
Monmouth Junction, NJ 08852
Telephone: (732) 274-3350
FAX: (732) 274-3356
Executive Director Amanda Blagman
(Hunterdon, Mercer, Middlesex, and Somerset Counties)
Family Link of Union and Essex Counties Regional Early Intervention Collaborative
2333 Morris Avenue, Suite A-20
Union, NJ 07083
Telephone: (908) 964-5303
FAX: (908) 964-6091
Executive Director Susan Marcario
Regional Early Intervention Collaborative of Ocean & Monmouth Counties
Howell Heritage Plaza
3522 Route 9 South, Suite 301
Howell, NJ 07731
Telephone: (732) 364-2010
FAX: (732) 364-2061
Executive Director Marie Coll
Northeast Regional Early Intervention Collaborative
57 Willowbrook Boulevard, Suite 303
Wayne, NJ 07470
Telephone: (973) 256-8484
FAX: (973) 256-1233
Executive Director Jane Campbell
(Bergen, Hudson, and Passaic Counties)
Northwest New Jersey Regional Early Intervention Collaborative
PO Box 742
Flanders, NJ 07836
Telephone: (973) 927-7558
FAX: (973) 927-7765
Executive Director Jordana Zeger
(Morris, Warren, and Sussex Counties)
| SCAHS County Case Management Services |
| Atlantic County |
(609) 645-7700 |
| Bergen County |
(201) 599-6153 |
| Burlington County |
(609) 267-1950 |
| Camden County |
(609) 374-9734 |
| Cape May County |
(609) 465-1203 |
| Cumberland County |
(609) 453-2154 |
| Essex County |
(973) 857-4663 |
| Gloucester County |
(609) 262-4100 |
| Hudson County |
(201) 915-2514 |
| Hunterdon County |
(908) 788-6398 |
| Mercer County |
(609) 588-8501 |
| Middlesex County |
(908) 846-0614 |
| Monmouth County |
(732) 224-6950 |
| Morris County |
(973) 971-4155 |
| Ocean County |
(732) 341-9700 |
| Passaic County |
(973) 256-4636 |
| Salem County |
(609) 935-7510 |
| Somerset County |
(908) 725-2366 |
| Sussex County |
(973) 948-5400 |
| Union County |
(908) 889-0950 |
| Warren County |
(908) 835-1172 |
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Epilepsy
American Epilepsy Society
342 North Main Street
West Hartford, CT 06117-2507
860-586-7505
860-586-7550 (fax)
www.aesnet.org
Email: info@aesnet.org
Epilepsy Foundation
4351 Garden City Drive
Landover, MD 20785-2267
800-332-1000
301-459-3700
301-577-2684 (fax)
www.efa.org
Email: postmaster@efa.org
THRESHOLD - Intractable Seizure Disorder Support Group and Newsletter
2150 Highway 35, Suite 207C
Sea Girt, NJ 08750
www.efnj.com
Email: fsnj@aol.com
Rasmussen Syndrome Support Group
c/o Al and Lynn Miller
8235 Lethbridge Road
Millersville, MD 21108
410-987-5221 (voice/fax)
http://medhlp.netusa.net/www/rasm.htm
Email: rssnlynn@aol.com
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Erb's Palsy
Brachial Plexus/Erb's Palsy Support Group and Informational Network, Inc.
P.O. Box 23
Larsen, WI 54947
920-836-9955
920-836-9587
Email: nationalbpi@powernetonline.com
Headaches
American Headache Society
19 Mantua Road
Mount Royal, NJ 08061
856.423.0043
856.423.0082 (fax)
www.ahsnet.org
Email: ahshq@talley.com
American Council for Headache Education
19 Mantua Road
Mt. Royal, NJ 08061
856-423-0258
856-423-0082 (fax)
www.achenet.org
Email: achehq@talley.com
[ back to top ]Muscular Dystrophy
Muscular Dystrophy Association
3300 East Sunrise Drive
Tucson, AZ 85718-3208
800-572-1717
520-529-2000
520-529-5300 (fax)
www.mdausa.org
Email: mda@mdausa.org
Neurofibromatosis
National Neurofibromatosis Foundation
95 Pine Street, 16th Floor
New York, NY 10005
800-323-7938 (voice/TTY)
212-344-6633
212-747-0004 (fax)
www.nf.org
Email: nnff@nf.org
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Reflex Sympathetic Dystrophy Syndrome
Reflex Sympathetic Dystrophy Syndrome Association of America
P.O. Box 821
Haddonfield, NJ 08033
856-795-8845 (voice/fax)
www.rsds.org
Email: jwbroatch@aol.com
Rett Syndrome
International Rett Syndrome Association
9121 Piscataway Road
Clinton, MD 20735
800-818-7388
301-856-3334
301-856-3336 (fax)
www.rettsyndrome.org
Email: irsa@rettsyndrome.org
[ back to top ]Spina Bifida
Spina Bifida Association of America
4590 MacArthur Boulevard NW, Suite 250
Washington, DC 20007-4226
800-621-3141
202-944-3285
202-944-3295 (fax)
www.sbaa.org
Spinal Muscular Atrophy
Families of SMA
P.O. Box 196
Libertyville, IL 60048-0196
800-886-1762
847-367-7620
847-367-7623 (fax)
www.fsma.org
Email: sma@fsma.org
Sturge-Weber Syndrome
Sturge-Weber Foundation
P.O. Box 418
Mount Freedom, NJ 07970
800-627-5482
973-895-4445
973-895-4846 (fax)
www.sturge-weber.com
Email: swf@sturge-weber.com
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Tourette Syndrome
Tourette Syndrome Association
42-40 Bell Boulevard
Bayside, NY 11361-2820
718-224-2999
718-279-9596 (fax)
www.tsa-usa.org
Email: ts@tsa-usa.org
Tremors
International Tremor Foundation
7046 West 105th Street
Overland Park, KS 66212-1803
888-387-3667
913-341-3880
913-341-1296 (fax)
www.essentialtremor.org
Email: staff@essentialtremor.org
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Tuberous Sclerosis
National Tuberous Sclerosis Association
8181 Professional Place, Suite 110
Landover, MD 20785-2226
800-225-6872
301-459-9888
301-459-0394 (fax)
www.ntsa.org
Email: ntsa@ntsa.org
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